The Impact of Computer Resources on Child Neurology

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Chapter 108 The Impact of Computer Resources on Child Neurology

As computer technology becomes more integrated into our lives, much of the information that we have now, including summarization of knowledge in textbook chapters, will be accessed primarily through electronic means. This chapter examines how such changes are unfolding: in the ways we communicate and discuss information, in the ways we marshal information to diagnose and treat patients, and in the ways we educate newcomers to the field and keep experienced clinicians up to date. Table 108-1 at the end of the chapter lists websites of interest to child neurologists.

Table 108-1 Selected Websites of Interest to Pediatric Neurologists

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Name URL (Address) Description
ACADEMY AND ASSOCIATION SITES
American Academy of Child and Adolescent Psychiatry http://www.aacap.org/ “Facts for Families” gives parent information on a variety of topics. Useful for office handouts
American Association of Neurological Surgeons http://www.aans.org/ A well-designed website that features society information
American Academy of Neurology (AAN) http://www.aan.com/ Academic and administrative publications, AAN News, practice parameters, directory information, neurology rating scales, and clinical trials
American Academy of Pediatrics http://www.aap.org/ A variety of patient and professional information
American Epilepsy Society http://www.aesnet.org/ Research about epilepsy and education for epileptologists
American Psychiatric Association http://www.psych.org/ CME program via the Internet, as well as publications and news
Child Neurology Education and Research Foundation http://childneurologyfoundation.org/ Research and advocacy arm of the Child Neurology Society. Information about funding opportunities
Child Neurology Society http://www.childneurologysociety.org/ Academy, meeting, and employment information
International Child Neurology Association http://www.icnapedia.org/icna/ Academy and meeting information
Society for Neuroscience http://web.sfn.org/ Largest neuroscience research association
CLINICAL DECISION-MAKING
Isabel http://www.isabelhealthcare.com Commercial, pediatric decision-making software
SimulConsult http://simulconsult.com/ Neurological syndromes. Peer-reviewed, frequently updated
CLINICAL TESTING INFORMATION
GeneTests http://www.genetests.org/ A very in-depth database of available molecular testing
CME SITES
American Medical Association http://www.ama-assn.org/ama/pub/education-careers/continuing-medical-education.shtml Includes database of CME sites
National Institutes of Health (NIH) Consensus Program http://consensus.nih.gov/ Program based on NIH consensus statements
Virtual Lecture Hall http://www.vlh.com/ Large listing of online CME courses
ELECTRONIC TEXTS
Bookshelf of the National Center for Biotechnology Information http://www.ncbi.nlm.nih.gov/sites/entrez?db=books Searchable collection of online biomedical books
eMedicine http://emedicine.medscape.com/
http://emedicine.medscape.com/neurology
Peer-reviewed texts on a variety of medical and neurological topics
GeneReviews http://www.ncbi.nlm.nih.gov/sites/GeneTests/?db=GeneTests One of the best and most up-to-date reviews of genetic diseases
Medcyclopaedia http://www.medcyclopaedia.com/ Based on the Encyclopaedia of Medical Imaging
MedLink Neurology http://www.medlink.com/  
Medpedia http://www.medpedia.com A collaborative site aimed at sharing knowledge about health and medicine among medical professionals and the general public
Merck Manual http://www.merck.com/mmhe/index.html Searchable editions of the Merck Manuals
Miami Children’s Brain Institute Child Neuro Wiki https://braininstitute.mch.com/wiki/Category:Public A catalog of information relevant to pediatric neurology
Neurologic Exam http://library.med.utah.edu/neurologicexam/html/home_exam.html Text, figures, and movies are provided to illustrate various elements of the neurologic examination
OMIM: Online Mendelian Inheritance in Man http://www.omim.org/ Superb, continuously updated online version of Dr. Victor A McKusick’s book. Disorders searchable by symptoms and signs, with references
Neuromuscular Disease Center http://neuromuscular.wustl.edu/ Comprehensive site on neuromuscular disease
Orphanet http://www.orpha.net Portal for rare and orphan diseases
PediNeuroLogicExam http://library.med.utah.edu/pedineurologicexam/html/home_exam.html Pediatric neurological examination, with movies
UpToDate http://www.uptodate.com/  
Whole Brain Atlas http://www.med.harvard.edu/AANLIB/home.html Excellent MRI images
Wikipedia http://www.wikipedia.org/ Collaborative encyclopedia
MEDICAL EDUCATION RESOURCES
Baylor Neurology Case of the Month http://www.bcm.edu/neurology/case.cfm  
Child Neurology Case Studies www.childneurologysociety.org/education/casestudies  
Eye Simulator http://cim.ucdavis.edu/EyeRelease/Interface/TopFrame.htm Great simulator for understanding functions of eye muscles and pupils
Headache Cases for Medical Students http://www.americanheadachesociety.org/residents_fellows/MedicalStudentHeadacheCases.asp From the American Headache Society
HEAL (Health Education Assets Library) http://www.healcentral.org/index.jsp Free digital material for health sciences education, with user reviews and tagging (searchable keywords) of resources
Lesion Localizer http://lesionlocalizer.com/ Cases with clinical and pathological correlation. Fairly basic
MedEdPORTAL from the Association of American Medical Colleges http://services.aamc.org/30/mededportal/servlet/segment/mededportal/information/ Peer-reviewed publication service and repository for medical and oral health teaching materials, assessment tools, and faculty development resources
Medical Student website http://www.medicalstudent.com Links to many online medical texts
Neuroanatomy: draw it to know it http://drawittoknowit.com Neuroanatomy education resource
NeuroLearn; Neuropathology learning program, University of Oklahoma Health Sciences Center http://moon.ouhsc.edu/kfung/jty1/index.htm Includes anatomy, descriptive pathology, case reviews, and quizzes
Neurolist cases http://www.neurolist.com/site/neurolist_cases.htm  
NeuroSAE: AAN’s Self-Assessment Examination in Clinical Neurology https://www.aan.com/elibrary/continuum/index.cfm?event=moc.home  
Neuroscience Tutorial http://thalamus.wustl.edu/course/ Illustrated guide to clinical neuroscience associated with first-year course for medical students at Washington University
RetinaDx http://kellogg.umich.edu/retinadx/ “Retinal cases” and teaching images from the Kellogg Eye Center at the University of Michigan
Stanford University Medworld http://www-med.stanford.edu/medworld/home Frequently updated. Edited by medical students at Stanford University
Visible Human Project http://www.nlm.nih.gov/research/visible/visible_human.html  
Whole Brain Atlas http://www.med.harvard.edu/AANLIB/home.html Neuroimaging of normal and diseased brain
MEDICAL LITERATURE BROWSERS AND ABSTRACTING SERVICES
Amedeo http://amedeo.com/index.htm Weekly e-mails with lists of selected recent publications (e.g., epilepsy, migraine)
Google Scholar http://scholar.google.com/ Search engine for articles, theses, books, abstracts, and court opinions, from many resources
PubMed http://www.ncbi.nlm.nih.gov/PubMed/ An extremely useful and updated search engine for the Medline database of abstracts and citations
PubMed Central http://www.ncbi.nlm.nih.gov/pmc/ Digital archive of biomedical and life sciences journals, including full-text articles
MISCELLANEOUS
Child-Neuro http://www-personal.umich.edu/~leber/c-n/ Linkage to other relevant sites and mailing lists, clinical trials, specialized laboratories, etc.
Child-Neuro listserv http://www-personal.umich.edu/~leber/c-n/e-mailUM.html Includes a link to images and videos pertaining to cases discussed by e-mail
Neurolist http://www.neurolist.com/ Adult neurology listserv, including specialized neuropsychology, EEG, MS, and ALS lists
Sermo http://www.sermo.com Web-based discussion forum for physicians in many specialties
NEUROLOGY AND PEDIATRICS PATIENT AND PHYSICIAN RESOURCES
American Academy of Neurology (AAN)’s Patients and Caregivers http://thebrainmatters.org/ AAN’s public education website, for comprehensive coverage of neurologic issues
American Academy of Neurology Practice Guidelines http://www.aan.com/go/practice/guidelines  
BrainTalk Communities http://brain.talkcommunities.org/forums/ Interactive, online discussion about various neurology-related topics, through Massachusetts General Hospital
Child Neurology Knowledge Environment http://www.icnapedia.org/ Very useful compilation of news and announcements useful to child neurologists, from the International Child Neurology Association
Cochrane Library http://www3.interscience.wiley.com/cgi-bin/mrwhome/106568753/HOME Regularly updated collection of evidence-based medicine databases
Cochrane Reviews http://www.cochrane.org/reviews/ Systematic treatment reviews
Decipher https://decipher.sanger.ac.uk Database for correlating chromosomal abnormalities and phenotype
Epocrates http://www.epocrates.com/ Commercial online and smartphone application with useful drug and disease information
GeneralPediatrics http://www.generalpediatrics.com/ Very thorough directory and search engine for pediatric resources
Genetics photographs http://medgen.genetics.utah.edu/photographs.htm Photographs related to genetic diseases
Harriet Lane Links http://derm.med.jhmi.edu/hll/indexOLDNov2005.cfm Catalog of pediatric information on the Internet
Health Care Professionals: Neurology http://www.hcplive.com/neurology Attempts to be a comprehensive portal of useful information for the health-care professional
Library of The Family Village http://www.familyvillage.wisc.edu/library.htm The ultimate catalog of Internet resources concerning neurological diseases and developmental disabilities
Malformation Terminology http://research.nhgri.nih.gov/morphology/index.cgi Definitions and photos of malformations of the head and extremities
Merck Medicus http://www.merckmedicus.com/pp/us/hcp/hcp_home.jsp Advertising-free medical portal with news, online learning resources, and diagnostic tools
National Institute of Neurological Diseases and Stroke (NINDS) http://www.ninds.nih.gov/ NINDS homepage
National Institutes of Health (NIH) http://www.nih.gov/ NIH homepage
Neuro-Ophthalmology Virtual Education Library http://novel.utah.edu Repository of digital materials (images, video, lectures, articles, and animations), to be used for educational and research purposes by health-care professionals, educators, patients, and students. The Moran Eye Center link on the page has numerous videos
PatientsLikeMe http://www.patientslikeme.com/ Forum for discussions between patients with neurological problems
Pediatric Commons http://www.pediatriccommons.org/ “A community of pediatric learning, teaching, sharing and collaboration”
Physicians Desk Reference http://www.pdr.net/ Web portal for drug and disease information, patient education, specialty news, journal abstracts, conference information
Phytube http://phytube.com/MedicationVideos/tabid/62/Default.aspx Videos providing information about medications used in child neurology
SeachingPediatrics http://www.searchingpediatrics.com/ A search engine for searching pediatric peer-reviewed information
University of Michigan Department of Pediatrics, Evidence Based Medicine http://www.med.umich.edu/pediatrics/ebm/topics/neuro.htm Pediatric neurology topics prepared by pediatric residents
U.S. Department of Health and Human Services http://www.healthfinder.org/ A nice gateway site for patient-related information
RESEARCH STUDIES
Center Watch “Clinical Trials In Neurology” http://www.centerwatch.com/patient/studies/area10.html A searchable listing for patients and physicians
Child-Neuro: Research Protocols Seeking Patients http://www-personal.umich.edu/~leber/c-n/seekpts.html  
National Cancer Institute (NCI) Clinical Trials http://www.cancer.gov/clinicaltrials From the U.S. National Cancer Institute
National Institutes of Health Clinical Trial Database http://clinicaltrials.gov/  
DISEASE-RELATED SITES (A SAMPLING)
Ataxia Telangiectasia http://www.atcp.org/  
Attention-Deficit Hyperactivity Disorder http://www.addforums.com/forums/index.php  
Autism Society of America http://www.autism-society.org/  
Brain Tumor: OncoLink http://www.oncolink.upenn.edu/  
Centers for Disease Control http://www.cdc.gov/ Excellent “Diseases & Conditions A-Z Index”
Cerebral Palsy http://www.ucp.org  
Dystonia http://www.dystonia-foundation.org/  
Epilepsy Foundation of America http://www.epilepsyfoundation.org/  
Genetics Home Reference http://ghr.nlm.nih.gov/
Neurological diseases: http://ghr.nlm.nih.gov/ghr/conditionsByCategory/show/brainandnervoussystem
From the U.S. National Library of Medicine
Headache http://www.americanheadachesociety.org/ American Headache Society
Ketogenic Diet Site http://www.epilepsyfoundation.org/answerplace/Medical/treatment/diet/  
Leukodystrophy http://www.ulf.org United Leukodystrophy Foundation
Mental Retardation http://www.aamr.org American Association on Intellectual and Developmental Disabilities (AAIDD)
Movement Disorders http://www.wemove.org/ We Move
Muscular Dystrophy Association http://www.mda.org/  
National Organization for Rare Disorders (NORD) http://www.rarediseases.org/  
Neurofibromatosis http://www.ctf.org/ Children’s Tumor Foundation
Neuropathy http://www.neuropathy.org Neuropathy Association
Periodic paralysis