Care of the sick child

Published on 21/03/2015 by admin

Filed under Pediatrics

Last modified 21/03/2015

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Care of the sick child

Most sick children are cared for by their parents at home. Medical management is initially given by general practitioners or, in some countries, primary care paediatricians. Most hospital admissions are at secondary care level. A smaller number of children will require tertiary care in a specialist centre, e.g. paediatric intensive care unit, cardiac or oncology unit. Most specialist centres now share care within clinical networks, with the centre linked to a number of surrounding hospitals. For very rare and complex treatments, e.g. organ transplantation and craniofacial surgery, there are a few national centres (Fig. 5.1).

Primary care

The majority of acute illness in children is mild and transient (e.g. upper respiratory tract infection, gastroenteritis) or readily treatable (e.g. urinary tract infection). Although serious conditions are uncommon (Fig. 5.2), they must be identified promptly. The condition of sick children, especially infants, may deteriorate rapidly, and parents require rapid access to a general practitioner or other healthcare professionals working in primary care, who in turn require ready access to secondary care. Advice may also be obtained from a health professional by telephone, e.g. via NHS Direct, via the internet with NHS Direct Online or by NHS Direct cable TV services. Although an individual general practitioner will care for relatively few children with serious chronic illnesses (e.g. cystic fibrosis, diabetes mellitus) or disability (e.g. cerebral palsy), each affected child and family are likely to require considerable input from the whole of the primary care team.

Hospital care

Accident and Emergency

Approximately 3 million children (1 in 4) attend an Accident and Emergency (A&E) department each year in England and Wales. The services which should be provided for children are shown in Box 5.1. The number of departments able to meet these expectations is increasing, often by creating a dedicated children’s A&E department.

Hospital admission

In England and Wales, 1.9 million, i.e. 1 in 6 children is admitted to hospital each year, representing 16% of all hospital admissions. About 60% of acute admissions are under the care of paediatricians, and the remainder are surgical patients (although a paediatrician is also involved in their care while they are in hospital, to oversee any medical requirements) (Fig. 5.3). Most paediatric admissions are of infants and young children under 5 years of age and are emergencies, whereas surgical admissions peak at 5 years of age, one-third of which are elective. The reasons for medical admission are shown in Table 5.1.

Table 5.1

Reason for emergency admission of children <15 years old to hospital

System Specific disorders
Respiratory 25% Respiratory infections 20%
Asthma 3%
Injuries and poisoning 17% Head injury 5%
Poisoning 1%
Gastroenterological 13% Gastroenteritis 5%
Infection 6% Viral infection 5%
Urogenital 3% Urinary tract infection 2%
Neurological 2% Seizures 1%
Endocrine and metabolic 2% Diabetes mellitus 1%
Skin 2%  
Muskuloskeletal 2%  
Other 28%  

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Data based on 58 061 admissions, 2009–2010. ISD, Scotland.

Although primary and community health services for children have improved markedly over the last decade, the hospital admission rate has continued to rise, although it may now be plateauing (Fig. 5.4). The reasons for this are unclear, but probably include:

Strenuous efforts are made to reduce the rate and length of hospitalisation (Fig. 5.4):

• Speciality of ambulatory paediatrics has been developed; it encompasses specialist paediatricians providing hospital care for immediate medical problems outside inpatient paediatric wards

• Dedicated children’s short stay beds within or alongside the A&E department are increasingly available to allow children to be treated or observed for a number of hours and discharged home directly, avoiding the need for admission to the ward

• Day-case surgery has been instituted for many operations which used to require overnight stay.

• Day units are used for complex investigations and procedures instead of inpatient wards

• Shared care may be provided between hospitals and primary care, with paediatricians and other healthcare professionals seeing children at home or in primary care settings

• Homecare teams aim to provide care in the child’s home and thereby reduce hospital attendance, admission and length of stay. Most teams comprise community paediatric nurses, but some include doctors, and either cover all aspects of paediatric care within a geographical area or are for a specific condition, e.g. cystic fibrosis or malignancy, usually centred around a tertiary referral centre. The problems managed at home by such teams include:

– Changing postoperative wound dressings or managing burns

– Day-to-day management and support for the family for chronic illnesses, e.g. diabetes mellitus, asthma and eczema

– Specialist care, e.g. home oxygen therapy, intravenous infusions via a central venous catheter (e.g. antibiotics or chemotherapy) or peritoneal dialysis

– Symptom and pain control and emotional support of terminally ill children (Fig. 5.5)

 Children’s hospices provide respite or terminal care for children with life-threatening conditions, including malignancy disease, neurodegenerative, metabolic and other disorders.

 Some teams provide a ‘hospital at home’ service for children who are acutely ill, in order to avoid hospitalisation.

Children in hospital

Children should only be admitted to hospital if their care cannot be provided safely at home. Removing young children from their familiar environment to a strange ward is stressful and frightening for the child, parents and family. Ill or injured children may regress in their behaviour, acting younger than their actual age. It also disrupts family routines, not only of the child in hospital but also of siblings who still need to be looked after at home and transported to and from nursery or school.

Family-centred care

Care in hospital should be child- and family-centred. Parents and siblings should be involved in the child’s care, which should be appropriate for the child’s physical and emotional maturity and needs. A holistic approach should be adopted towards the child and his family rather than simply focusing on the medical condition. Young children may interpret the pain experienced in hospital and separation from their home or parents as punishment. In general, the distress arising from separating children from their mothers is greatest in young children, and increases the longer the length of stay and the more frequently the child is admitted. Parents of infants and young children should be encouraged to stay with their child overnight and continue to provide the care and support they would give at home. Parents know best about their child’s usual behaviour and habits and due attention must be paid to their worries or comments. Many parents rapidly learn some of the nursing skills, e.g. tube feeding, required by their child. Good communication is needed between staff and parents to arrive at a mutually agreed plan of responsibilities for looking after the child. This will avoid parents either feeling pressurised to accept responsibilities they are not confident about or feeling brushed aside and undervalued by staff. Parents should be able to stay overnight with their child.

Skilled staff

Children in hospital should be cared for by specially trained medical, nursing and support staff. Every child admitted to hospital should be supervised by a children’s physician or surgeon. Children constitute only a relatively small proportion of the workload in acute surgical specialities, so surgeons and anaesthetists should treat a sufficient number of children to maintain their skills. There should be a ‘named nurse’ responsible for planning and coordinating care by other nurses to ensure that families receive all the information they need and provide a link with staff involved in discharge planning and post-discharge arrangements.

Tertiary care

As the number of children requiring tertiary care is relatively small, it is concentrated in specialist centres. Increasingly, the centre is linked to several district general hospitals to form a clinical network. These centres have the advantage of having a wide range of specialists, not only medical staff but also nursing and other healthcare professionals, and diagnostic and other services. A disadvantage is that they are often some distance from the child’s home and hospital stay may be prolonged, e.g. following a bone marrow transplant. Accommodation for parents should be provided. Shared care arrangements between tertiary centres and local hospitals are designed to minimise the need for the child to travel to the specialist centre, but depend on excellent communication to be effective and valued by the family. For example, a child with leukaemia would attend a tertiary centre for the initial diagnostic assessment and treatment, and subsequently for specialised treatment and periodic review, but much of the maintenance therapy would be provided by the local hospital together with monitoring of their health and regular blood and other tests performed by a specialist nurse at home.

Pain

It is easy to ignore or underestimate pain in children. Pain should ideally be anticipated and prevented.

Management

The approaches to pain management are listed in Box 5.2

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