CHAPTER 30 Withdrawal of treatment
General principles
• The initiation or the prolongation of treatment is not necessarily in the best interests of the infant.
• The opinion of parents as to the best interests of the infant must be respected and accounted for.
• Society has the right to intervene when parents’ decisions are not clearly in the best interests of the infant.
• Resources are finite. There may be competing financial claims which are as vital to human life as is neonatal intensive care.
Non-initiation of life support
• Initiation of life support is inappropriate in infants born with lethal non-correctable malformations (such as anencephaly and confirmed trisomy 13 or 18).
If possible, this eventuality should be discussed with the parents before birth.
• There exists a discretionary zone (‘grey zone’) in neonatal practice. Within this zone, after considered discussion between parent and specialist caregivers, it would be acceptable and reasonable medical practice to not initiate life support for a newborn.
• The decision whether to initiate treatment or not within the ‘grey zone’ will depend on the wishes of the parents and other factors such as the condition of the baby at birth and past obstetric history. Under these circumstances counselling should always include the option of not starting resuscitation and active treatment, and the potential consequences of active intervention.