Patient-Focused Wrist Outcome Instrument—the Adelaide Questionnaire

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W2 A Patient-Focused Wrist Outcome Instrument—the Adelaide Questionnaire

Measuring the outcome after distal radius fracture is an essential part of clinical practice.1,2 The primary purpose is to provide information regarding the response of the patient to fracture management and rehabilitation.3 This information is used for other purposes as well, such as to focus clinical practice by assisting with setting of treatment goals, developing management plans, aiding with patient motivation,4,5 justifying service provision, documenting continuous improvement strategies, and benchmarking.6,7

Outcome measurement after distal radius fracture is a challenging activity because the wrist is an anatomically compact and biomechanically complex region of the body.8 Little is known about the bony morphology and capsular, ligamentous, and muscular contributions to wrist function compared with other joints, such as the knee and the hip. Preliminary findings on wrist kinematics and proprioception have been reported more recently.912 Further work in these areas and in the musculotendinous contribution to wrist stability and motion is required, however, so that outcome instruments accurately reflect the structure and function of the wrist.

Many instruments have been developed to evaluate the outcome after distal radius fracture.13 Until the late 1990s, these instruments primarily assessed impairments, such as wrist range of motion, grip strength, and pain. In theory, however, a linear relationship does not exist between wrist impairments, such as range of wrist motion, and the ability to perform daily activities.14 An extreme clinical example is after total wrist fusion, when patients have no wrist movement. Most patients report, however, that they are able to perform most daily activities despite this impairment.15 Consequently, there has been a shift over the past decade to evaluate functional aspects of a wrist disorder, by specifically gathering information from patients regarding their ability to perform daily activities.16 This information is most frequently gained from administration of a standardized, clinimetrically sound questionnaire.1 This procedure also directly evaluates why patients present for treatment because their wrist typically interferes with their ability to perform daily activities.15,17

Four questionnaires are currently used in clinical practice to evaluate the outcome after distal radius fracture: the Disabilities of the Arm, Shoulder, and Hand (DASH),18 the patient-rated wrist evaluation (PRWE),19 the Michigan Outcomes Questionnaire (MHOQ),20 and the Modified Mayo Wrist Scoring System.21 The Modified Mayo Wrist Scoring System evaluates four variables—pain, satisfaction, range of motion, and grip strength—and does not evaluate the patient’s ability to perform daily activities. Scores for these variables are tallied and categorized as excellent, good, fair, and poor. This scoring system reports the end result of treatment, without a point of reference to baseline data. Baseline data are important so that magnitude of change that has occurred during the treatment period can be evaluated5,22 because not all individuals are symptom-free before distal radius fracture.23,24 For these reasons, the Modified Mayo Wrist Scoring System may be able to discriminate between individuals based on the final result of impairment variables, but cannot evaluate change in the ability to perform daily activities over time in individuals with distal radius fractures.

DASH, PRWE, and MHOQ are used in clinical and research settings to evaluate impairments (e.g., pain intensity) and the functional consequences (i.e., the ability to perform daily activities) after distal radius fracture.2527 Anecdotal reports suggest that there are three major limitations of these questionnaires, all which center around the evaluation of daily activities:

3. Patients often alter the way in which they perform daily activities by using compensatory mechanisms.23 Compensatory mechanisms are defined as “readjustments to life to accommodate a disorder.”31 These mechanisms have the potential to influence outcome measurement and should be directly evaluated. DASH and PRWE do not evaluate compensatory mechanism use. MHOQ evaluates three compensatory mechanisms.20 Patients after distal radius fracture consistently use different compensatory mechanisms, however, for different daily activities at different points in time during their rehabilitation.32 This detail is not covered in MHOQ.

Development of the Adelaide Questionnaire

A new wrist outcome instrument, the Adelaide Questionnaire, was developed to address the limitations of existing instruments.33 Specifically, the Adelaide Questionnaire assesses from the patient’s perspective the actual ability to perform daily activities after distal radius fracture and other unilateral musculoskeletal wrist disorders. The questionnaire was developed based on the results of a large qualitative study of individuals with wrist injuries23,33 and has undergone subsequent psychometric evaluation with excellent results (Table W2-1).24,3335

The Adelaide Questionnaire consists of three components (Fig. W2-1), as follows34:

2. An optional individualized component, which gains information regarding the amount of difficulty with up to five important daily activities that are specified by the patient. This section is completed when difficulty is experienced with daily activities other than the activities contained in the standardized component.24,34 Scores represent the magnitude of activity limitation associated with important daily activities not previously evaluated. They range from 0 (no activity limitation) to 50 (severe activity limitation associated with extremely important tasks). This section also contains a question on compensatory mechanism use for each of the nominated daily activities.
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FIGURE W2-1 The Adelaide Questionnaire.

From Bialocerkowski,33 reproduced with permission from Andrea Bialocerkowski.

Detailed instructions regarding scoring of the Adelaide Questionnaire can be found in the article by Bialocerkowski and colleagues.34

Clinical Application of the Adelaide Questionnaire to Patients after Distal Radius Fracture

The Adelaide Questionnaire has been used in clinical practice to document the recovery trajectory after distal radius fracture in terms of specific activity limitations and compensatory mechanisms used.24,32,33 Adult patients with a unilateral distal radius fracture with or without ulna fracture from public and private health care providers throughout Adelaide, Australia, were evaluated in 2000, using the Adelaide Questionnaire and other measures (see later) during the first 6 months following distal radius fracture. Recovery trajectories of patients residing in nursing homes or patients with coexisting medical disorders (e.g., rheumatoid arthritis, cerebrovascular accident, bilateral wrist disorders, concomitant disorders of the hand or upper limb) were not documented because these factors would likely influence their ability to perform daily activities and their goals of treatment. Likewise, data from individuals with little comprehension of written English were not collated because they might experience difficulty completing the Adelaide Questionnaire.

Patients were evaluated within the first 6 months following distal radius fracture, ideally at 8, 12, 18, and 24 weeks after fracture, using a standardized protocol consisting of:

TABLE W2-2 Clinical Tests Used to Evaluate Patients after Distal Radius Fracture

Clinical Test Equipment Protocol
Active wrist/forearm range of motion; wrist flexion; wrist extension; radial deviation; ulnar deviation; pronation; supination Plastic hand-held goniometer ASHT Clinical Assessment Recommendations37
Strength; grip; pinch Jamar dynamometer; Preston Pinch Meter ASHT Clinical Assessment Recommendations38; Macey and Burke39
Light touch sensation Semmes-Weinstein monofilaments (mini-kit) ASHT Clinical Assessment Recommendations40

ASHT, American Society of Hand Therapists.

Recovery trajectories were described using simple statistics (frequency, mean, SD, range, percentage change) to detail the patients’ demographic characteristics, their ability to perform daily activities before distal radius fracture and after fracture, compensatory mechanisms used, and impairments. Pearson correlation coefficients were used to examine the relationship between the ability to perform daily activities and impairments to determine if impairments, such as pain or wrist motion, are able to predict the ability to perform daily activities. This analysis was conducted because in clinical practice impairments are frequently used to recommend restrictions in daily activities.

Patients

Fifty-three patients contributed data for the recovery trajectories, with 26 patients having four assessments at 8, 12, 18, and 24 weeks after fracture.33 The demographic characteristics of the patients are representative of a population who sustain distal radius fractures—mainly women 40 to 65 years old (Table W2-3).41,42

TABLE W2-3 Demographic Characteristics of Distal Radius Fracture Patients

Demographic Characteristic All Patients Patients with Four Assessments
Total no. participants 53 26
Age (yr)    
Mean (SD) 61.7 (15.7) 61.8 (15.2)
Range 22-87 22-84
Gender    
Female 46 (87%) 22 (85%)
Male 7 (13%) 4 (15%)
Dominance of injury    
Dominant wrist 23 (43%) 12 (46%)
Nondominant wrist 30 (57%) 14 (54%)
Education    
Some primary school 8 (15%) 3 (12%)
Some high school 20 (38%) 10 (38%)
Graduated from high school 18 (34%) 10 (38%)
Graduated from TAFE 3 (6%) 1 (4%)
Graduated from university 2 (3.5%) 1 (4%)
Postgraduate degree 2 (3.5%) 1 (4%)
Employment status    
Employed 14 (26%) 6 (23%)
Homemaker 33 (62%) 17 (65%)
Retired 3 (6%) 1 (4%)
Retired because of illness 1 (2%) 1 (4%)
Unemployed 1 (2%) 1 (4%)
Student 1 (2%) 0 (0%)
Occupational change owing to wrist disorder    
No 53 (100%) 26 (100%)
Yes 0 (0%) 0 (0%)
Lives with caregiver    
No 21 (40%) 8 (31%)
Yes 32 (60%) 18 (69%)
Previous wrist injury    
No 42 (81%) 21 (81%)
Yes 11 (19%) 5 (19%)
Medical treatment received    
Plaster only 31 (58%) 13 (50%)
Other treatment 22 (42%) 13 (50%)
Physiotherapy received    
No 24 (45%) 10 (38%)
Yes 29 (55%) 16 (62%)

TAFE, Australia’s technical and further education institutes.

Adapted from Bialocerkowski A, Grimmer K, Bain G: Validity of the patient-focused wrist outcome instrument: do impairments represent functional ability? Hand Clin. 2003;19:449-455.

Ability to Perform Daily Activities before Fracture

A common clinical observation is that some patients report difficulty performing daily activities before their distal radius fracture.24,33 This observation is supported by our data, where 13% of patients (n = 7) reported difficulty performing one or more daily activities before fracture. Undoing a screw-top lid of a jar and making weight through the wrist were the most frequently reported daily activities (Table W2-4). Not everyone is symptom-free before their current wrist disorder,23,31,33 and a baseline measure such as this should be established to guide treatment expectations. The goal of treatment after distal radius fracture is to restore function to preinjury level. It is realistic to expect that these patients would experience difficulty performing the same daily activities as before distal radius fracture. Clinically, this expectation is frequently communicated to patients. Currently used outcome measures, such as DASH, PRWE, and MHOQ, do not quantify outcome with respect to preinjury status, and assume that all patients should attain full recovery.

TABLE W2-4 Difficult Daily Activities before Current Distal Radius Fracture (n = 53)

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Daily Activity Frequency of Report Percentage Report
Undoing a screw-top lid 3 6
Taking weight through the wrist 3 6
Turning on a tap 2 4