Millions of people take on the role of caregiver out of love, devotion and necessity. The role of a caregiver is often “invisible” for those not directly involved. However, its challenges are far more significant than others may realise.
Take this example from an article in Time magazine: “When Nancy Daly helped to care for her mother who was suffering from Alzheimer’s, the stress she felt was so intense that she would sometimes lock herself into a bathroom, where she would cry into a bath towel.”
At Right at Home, we consider all caregivers heroes. The role of a caregiver is crucial for those in need, whether it’s a family caregiver who is unpaid, or someone who chooses to make a career out of caring.
What is the reality? Understanding the challenges that caregivers face can inspire people to value their work.
The Emotional Weight
The emotional burden caregivers carry is often heavy. Caregivers may feel guilty, especially if they think they are not doing enough. As a mother caring for her child with cancer told Oncology Nursing News, they may also feel anger. She stated, “I was angry about the things happening to my sick child… I was angry at the universe. Underneath all the anger, I have never felt so helpless.”
The emotional rollercoaster that results from a loved one’s–or client’s–health fluctuating can cause constant stress and anxiety.
The Physical Toll
The physical demands on caregivers are often underestimated. Caregivers may help with household chores or keep the care recipient comfortable. If the care recipient is unable to move, a caregiver might need to assist them in transferring from a bed to the toilet or into a van that’s accessible. These responsibilities, over time, can cause physical exhaustion and health problems for the caregiver. According to a New York Times article, caregivers are more likely to suffer from serious illnesses such as cancer and depression and have a higher death rate.
Being a caregiver comes with inherent risks and challenges, making insurance a crucial aspect of the role. Caregivers encounter unforeseen circumstances while tending to others’ needs, including accidents, injuries, and liability issues. Having appropriate insurance coverage provides essential protection against potential legal or financial difficulties that may arise.
To embark on a caregiving journey, individuals must possess compassion, empathy, and a readiness to support others daily. While formal education or training in fields like nursing, social work, or healthcare can be advantageous, requirements vary based on the specific caregiving position. Additionally, acquiring certifications or licences may be mandatory in certain regions. Prospective caregivers are encouraged to gain practical experience through volunteering or internships, allowing them to refine their skills and comprehend the responsibilities associated with caregiving.
Financial Stress
Many caregivers are faced with financial difficulties. They often incur costs related to their loved one’s care, even though they do not receive a salary. The economic burden is compounded when the unpaid caregiver must reduce their working hours or quit their job to care for their loved ones. AARP reported recently that caregivers who care for veterans, on average, spend 1.5x as much money than on other family caregivers.
Social Isolation
Caregiving can be isolating. The demands on caregivers’ time and energy often make it difficult for them to maintain relationships with others, which makes them feel isolated and lonely. According to a recent study in the International Journal of Geriatric Psychiatry, caring for someone who has more than one medical problem can make them feel lonely. The authors concluded that caregivers of people who suffer from both physical and mental conditions are the most burdened.
The Juggling Act
The challenge for “sandwiched caregivers” who have their own families is double-sided. The caregiver must balance their family’s needs with those of the person for whom they are caring. Many caregivers also have to juggle employment, be it a remote job or a job away from the home. This adds a new layer of complexity as unpaid caregivers try to balance their careers and caregiving duties.
Lack of Recognition and Support
The lack of social recognition and support is one of the most challenging aspects of being a caretaker. Caring for others is not always seen as “real” work, and caregivers can struggle to find resources, respite and support.
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Caregiving is a complex and demanding role that touches every aspect of your life. This challenging and complex role deserves support, understanding and recognition. We can all do something to help caregivers. By reading this article, you’ve already taken the first steps. We need to improve the support we provide caregivers as a society – we all need them.
