Computer Assistive Devices and Environmental Controls

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Chapter 23 Computer Assistive Devices and Environmental Controls

This chapter provides an overview of assistive technology (AT) devices and services, including definitions, history, and legislation. It also discusses the use of AT by people with communication disorders, impaired mobility, hearing and visual impairments, and cognitive and learning disabilities. It describes the selection of appropriate technology and training in its use, suggests ways to avoid the abandonment of AT by clients and caregivers, and discusses the principles of clinical assessment and physician responsibility. Finally, it briefly discusses the future in terms of research and development, and application of emerging technologies to the needs of people with disabilities.

Defining Assistive Technology

The term assistive technology is fairly new, although history records the use of tools to enable people with disabilities to walk, eat, and see as far back as the sixth or seventh century BC.14,17 Public Law 100-40725 defines AT as “any item, piece of equipment or product system whether acquired commercially off the shelf, modified, or customized that is used to increase or improve functional capabilities of individuals with disabilities.” This definition also includes a second component defining AT services as “any service that directly assists an individual with a disability in the selection, acquisition or use of an AT device.” Public Law 100-407 specifies the following:

Since 1988, this definition has also been used in other federal legislation authorizing services or supports for persons with disabilities. The Individuals with Disabilities Education Act3 (IDEA) and Reauthorization of the Rehabilitation Act24 are both examples of legislation that further codifies Public Law 100-407.

History, Legislation, and Utilization of Assistive Technology

Education: The Individuals with Disabilities Education Act

IDEA originated in 1997 and was reauthorized most recently as Public Law 108-446 by the 108th Congress. IDEA strengthens academic expectations and accountability for the nation’s 5.8 million children with disabilities. One important impact of IDEA legislation is that it specifies that AT devices and services be provided to children from birth to 21 years of age to facilitate education in a regular classroom if such devices and services are required as part of the student’s special education, related services, or supplementary aids and services (Code of Federal Regulations, Title 34, Sections 300.308) (Box 23-1). For students with disabilities, AT supports their acquisition of a free and appropriate public education. All individualized education plans developed for children needing special education services must indicate that AT has been considered as a way “to provide meaningful access to the general curriculum.”27 AT devices and services included as a component of an individualized education plan must also be provided at no cost to the student or parents. The school, however, can use other public and private funding sources that are available to fund the AT (34 CFR).

Part C of IDEA also includes children before they start school. It covers the needs of children as soon as their developmental differences are noted. It intends that infants and toddlers receive services in the home or in other places, such as preschool settings, where possible. The services provided for these children are described in individualized family service plans. Individualized family service plans include parents, extended family, and early childhood interventionists and other related services personnel in planning and identifying goals and necessary services. IDEA also recognizes that coordination is needed to help families and children with the transition from infant and toddler programs to preschool programs. As a result, students with disabilities are being educated in preschool settings along with typically developing children in an effort to help all children reach the same developmental milestones.

The Americans with Disabilities Act and the Reauthorization of the Rehabilitation Act

The American Rehabilitation Act with Disabilities Act (ADA) was originally passed in 1990, and clarified the civil rights of persons with disabilities and specified equal access to public places, employment, transportation, and telecommunications. The ADA built on the foundation of the Rehabilitation Act of 1973 (updated in 2003 as the Reauthorization of the Rehabilitation Act) in recognizing the role of employment in enabling individuals with disabilities to become economically self-sufficient and integrated into communities. The ADA was amended in 2008, and these amendments became effective January 1, 2009. The amended ADA retains the original Act’s basic definition of “disability” as an impairment that substantially limits one or more major life activities, a record of such an impairment, or being regarded as having such an impairment.38,39 However, it changes the way that these statutory terms should be interpreted in several ways. Most significantly, the amended Act does the following:

Vocational rehabilitation services are often the key to enabling employment for adults with disabilities. The Rehabilitation Act mandates that AT devices and services should be considered and provided as a means to acquire vocational training, as well as to enter into and maintain employment. It also requires that AT be considered during the development and implementation of the Individualized Written Rehabilitation Plan, the document that guides a person’s vocational rehabilitation process. For example, if an individual has limited sight and needs to fill out paperwork to determine eligibility for vocational rehabilitation services, assistive devices to facilitate reading must be provided at that time. In recent years the Offices of Vocational Rehabilitation have become an important source of funding for AT devices and services to support employment for adults with disabilities.37

Assistive Technology and the International Classification of Functioning

The term disability is not always precise and quantifiable. The concept of disability is not even agreed on by persons who self-identify as having a disability, by professionals who study disability, or by the general public.23 This lack of agreement creates an obstacle to the study of disability and to the fair and effective administration of programs and policies intended for people with disabilities.4818 With this issue in mind, the World Health Organization (WHO) developed a global common health language, one that includes physical, mental, and social well-being. The International Classification of Impairment, Disabilities, and Handicaps was first published by the WHO in 1980 as a tool for classification of the “consequences of disease.” The newest version, International Classification of Functioning, Disability and Health (ICF), moves away from a “consequence of disease” classification (1980 version) to a more positive “components of health” classification. This latest version provides a common framework and language for the description of health and health-related domains and uses the following language:

The ICF and its language help professionals define the need for health care and related services, such as the provision of AT. It recognizes that physical, mental, social, economic, or environmental interventions can improve lives and levels of functioning for persons with diseases. These might include medical, rehabilitation, psychosocial, or other person-based interventions.41 It also characterizes physical, mental, social, economic or environmental interventions that will improve lives and levels of functioning. Because AT has the potential to improve daily activities and participation in social and physical environments and thus improve the quality of life of individuals with disabilities, it clearly fits within the ICF. The WHO common health language is used throughout this chapter to discuss the potential impact of appropriate AT.

Overview of Assistive Technology Devices

AT devices are designed to facilitate functional abilities and to meet the needs of humans throughout their varied life stages and roles. It is important to remember that AT device usage and requirements will change over time as individuals mature and take on different life roles. Consequently there is no “one size fits all” technology available.

Indirect Selection

Scanning is the most common indirect selection method used by persons with significant motor impairments. A selection set is presented on a display (e.g., a series of pictures or letters) and is sequentially scanned by a light or cursor on the device. The user chooses the desired item by pressing a switch when the indicator reaches the desired location or choice on the display.

Switches come in many styles and are selected based on the body part that will be activating them (e.g., elbow or chin) and the task or setting for using them (e.g., watching television in bed or using a communication device while eating). A switch can be as simple as a “wobble” switch that is activated by a gross motor movement such as hitting the switch with the head (Figure 23-1), hand, arm, leg, or knee. Other switches are activated by tongue touch, by sipping and puffing on a straw, or through very fine movements such as an eye blink or a single muscle twitch. Regardless, switch use and timing accuracy can be very difficult for new users and must be taught. One common method to teach switch activation and use is to interface a switch with battery-operated toys and games, or home or work appliances to increase motivation and teach the concepts used in indirect selection.

Fairly recent developments include eye-gaze switches, which calibrate intentional eye movement patterns and select targets such as individual keys on an onscreen keyboard. Other new developments include brain wave technology (Eye and Muscle Operated Switch [EMOS]) that responds to excitation of alpha waves to trigger a selection.

Assistive Technology for Communication Disorders

Vocal communication allows humans to interact, form relationships, and direct the events of their lives to enable choice and participation. Human communication is based on having both receptive and expressive language abilities and the physical capacity to reliably produce intelligible speech sounds. Communication impairment can result from congenital conditions such as mental retardation, cerebral palsy, developmental verbal apraxia, and developmental language disorders. Other impairments can be acquired through traumatic brain injury, stroke, multiple sclerosis, amyotrophic lateral sclerosis, tetraplegia, ventilator dependence, and laryngectomy resulting from cancer.3 AT devices that meet the needs of persons with many types of speech and language impairment are commonly called augmentative and alternative communication (AAC) devices, because they can either support or substitute for expressive language impairments. More recently the term speech-generating device has entered into the medical vocabulary to differentiate AAC devices from basic computer devices, especially when seeking third-party funding such as that from Medicaid and Medicare.8

Some individuals are completely unable to speak or have such severe expressive difficulties that only those very familiar with them are able to communicate effectively with them. Many devices are available for these individuals, ranging from simple, low-tech picture books to high-end, sophisticated electronic devices with digitally recorded or synthetic text-to-speech output capable of producing complex language interactions (Figure 23-2).

Although AAC devices are extremely useful to nonspeaking individuals, they do not replace natural communication. AAC device use should be encouraged along with all other available communication modalities such as gestures, vocalizations, sign language, and eye gaze.28

There are no firm cognitive, physical, or developmental prerequisites for using an AAC device. Instead, comprehensive evaluation techniques are used to match the individual’s abilities and communication needs with the appropriate AAC technologies. A qualified team of clinicians performs this evaluation, with input from the individual, family members, teachers, employers, and others. Because speaking is considered to be a critical human function, many parents and family members wait to seek out AAC devices in the hope that natural speech will develop. Research shows, however, that using an AAC device can actually support verbal language development, and can, in fact, increase the potential for natural speech to develop.3 Children and adults with severe communication impairments can benefit socially, emotionally, academically, and vocationally from using a device that allows them to communicate their thoughts, learn and share ideas, and participate in life activities.2

Electronic Voice Output Systems: Digital Speech

A variation in low-tech communication systems has developed as a result of the manufacture of low-cost microprocessors capable of storing digitized speech. These low-tech, digital voice output devices work like a tape recorder, allowing recording and storing of simple phrases into memory within the device. When users want to speak, they simply press a button and the device speaks the prerecorded message.

Devices such as One Step, Step by Step, and Big Mac (Figure 23-3) are simple and relatively inexpensive, and are designed to communicate quick, simple messages such as “hi,” “let’s play,” or “leave me alone.” These technologies are often used by very young children who are beginning communicators, or by those who have significant cognitive impairments. They are not appropriate for individuals needing or wanting to communicate complex thoughts and feelings.12

Complex digitized devices store several minutes of recorded voice that is usually associated with representative pictures or icons on a keyboard. These devices are often used by people who are not yet literate, have developmental disabilities, or simply wish to have a simple device to use when going to the store or out to eat. Examples are the SuperTalker, the ChatBox (Figure 23-4), and the Springboard.

Synthesized speech is created by software that uses rules of phonics and pronunciation to translate alphanumeric text into spoken output through speech synthesizer hardware. Voice output systems such as Tango, VMax, and ECO2 are examples of high-tech text-to-speech devices with built-in speech synthesis that speak words and phrases that have been typed or previously stored in the device, or both. The advantage of these systems is that they allow users to speak on any topic and use any words they wish to use. These systems, which can encode several thousand words, phrases, and sentences, are expensive ($6000 to $9000). They form, however, an essential link to the world for people with severe expressive communication disabilities.

All of these voice output systems, whether digital or text-to-speech, can be activated by direct selection (e.g., using a finger or a pointing device such as a mouth stick or head pointer). They can also be activated using indirect selection (e.g., using a scanning strategy or an infrared or wireless switch). In AAC device use, individuals will most commonly use a scanning strategy called row-column scanning, in which they activate a switch to begin the scan. When the row containing the desired key or icon is highlighted, the user hits the switch again to scan by column. The process is repeated until the desired word or phrase is assembled. Although the process can be slow and tedious, indirect selection often provides the only means many people have to communicate with others.

Among the latest developments for persons who are completely locked in are speech-generating devices that can be activated by a simple eye blink, or by visually gazing or “dwelling” on the desired area of the screen. The DynaVox EyeMax System is one example of this new, advanced access method for communicators who use the DynaVox Vmax. It comprises two parts: a DynaVox VMax and a DynaVox EyeMax Accessory.

AAC devices differ in the mapping and encoding strategies used to represent language, and in the storing and retrieving methods used for vocabulary. However, all systems use either orthographic or pictographic symbols, which vary in ease of learning. When selecting a set of symbols for an individual as part of the user interface, it is important to consider these factors and compare them with the individual’s cognitive and perceptual abilities.

Assistive Technology for Mobility Impairments

Motor impairments greatly affect the ability of individuals to interact with their environment. Infants are compelled to roll, then crawl and toddle, to explore their surroundings. Any motor impairment can greatly affect overall development. This is often the situation with cerebral palsy, spina bifida, arthogryposis, and other diagnoses that affect motor skills. Early intervention, and having supportive families able to create modifications and incorporate AT devices into activities, can help children achieve developmental milestones.

The loss of acquired motor abilities through trauma or disease is experienced as a severe loss for children and adults and occurs with spinal cord injury, stroke, multiple sclerosis, and amputation. There are many forms of AT that help compensate for impaired motor skills, and they should be introduced as early as possible in rehabilitation to ensure the best outcome possible.

Upper Body Mobility Devices

Given the importance of computer use in education, training, and employment, many AT devices have been developed to provide access to computers for individuals with upper body mobility impairment, such as poor hand control or paralysis. For individuals who are unable to use a standard mouse and keyboard, multiple AT options are available.

Alternate computer keyboards come in many shapes and sizes. Expanded keyboards such as the Intellikeys (Figure 23-5) provide a larger target or key surrounded by inactive space than is found in a standard keyboard. Options such as delayed activation response help individuals who have difficulty with pointing accuracy or removing a finger after activating a key. Individuals unfamiliar with a standard QWERTY keyboard layout have the option for alphabetical layout. This is often helpful for young children who are developing literacy skills, as well as for adults with cognitive or visual impairments.

There are also smaller keyboards (e.g., Tash Mini Keyboard) designed for persons with limited range of motion and endurance. They are also helpful for individuals who type with one hand, or use a head pointer or mouth stick to type. These keyboards use a “frequency of occurrence” layout. The home or middle row in the center of the keyboard holds the space bar and the letters in English words that occur most frequently (e.g., “a” and “e”). All other characters, numbers, and functions (including mouse control) fan out from the center of the keyboard based on how frequently they are used in common computer tasks.

Voice recognition (VR) is a mass-market technology that has become essential for computer access for many persons with motor impairment. Instead of writing via the keyboard, VR users write by speaking words into a microphone. The computer processor uses information from the user’s individual voice file, compares it with digital models of words and phrases, and produces computer text. If the words are accurate, the user proceeds; if not, the user corrects the words to match what was said. As the process continues, the computer updates its voice file and VR accuracy improves. This software is cognitively demanding yet can offer “hands-free” or greatly reduced keyboarding to many individuals with motor impairment.

Another group of computer input methods includes devices that rely on an onscreen keyboard visible on the computer monitor, such as the Head Mouse Extreme and TrackerPro. The user wears a head-mounted signaling device or a reflective dot on the forehead to select keys on the onscreen keyboard, choose commands from pull-down menus, or direct mouse movement. Onscreen keyboards are typically paired with rate enhancement options like word prediction or abbreviation expansion to increase a user’s word-per-minute rate. Because so many tasks can be accomplished through computers, individuals with disabilities—even those with the most severe motor impairments—can fully participate in life. They can perform education- and work-related tasks, and monitor and control an unlimited array of devices and appliances at home, work, and school.

Assistive Technology for Ergonomics and Prevention of Secondary Injuries

A rapidly growing area of concern for AT practitioners is the development of repetitive strain injuries (RSIs) among both able-bodied and disabled individuals. Although specialized keyboards and mouse control have provided computer access for many individuals, the pervasiveness of computer technology has also increased the possibility of RSIs. During the past few years, an entire industry of AT has developed to deal with repetitive motion disorders.

Computer desks, tables, and chairs used in computer laboratories, classrooms, and offices do not always match the physical needs of users. When people with and without disabilities spend hours repetitively performing the same motor movement, they can and do develop RSIs. Potential solutions include properly supporting seated posture, raising or lowering a chair or desk for optimal fit, implementing routine breaks, and using ergonomically designed keyboards and other assistive technologies.

Many of the AT devices described in this chapter (i.e., alternate and specially designed ergonomic keyboards, VR software, and other technologies designed to minimize keystrokes) can also provide useful solutions for individuals with RSIs. There are also Internet-based resources that target ergonomic issues, such as those found in Table 23-1.

Table 23-1 Internet-Based Resources for Ergonomics

Organization Website Address
Government Sites
NASA Ergo Resources http://ohp.ksc.nasa.gov/topics/ergo/
NIOSH Web http://www.cdc.gov/niosh/topics/ergonomics/
OSHA Web http://www.osha.gov/SLTC/ergonomics/index.html
Military Sites
Department of Defense Design Criteria MIL-1472F http://safetycenter.navy.mil/instructions/osh/MILSTD1472F.pdf
Educational Institution Sites
Cornell University Ergonomics http://ergo.human.cornell.edu/
Ergonomic Design Standard—University of Melbourne http://www.unimelb.edu.au/ehsm/Ergonomic_design.pdf
Ergonomic Guidelines for Video Display Terminal http://www.fiu.edu/~ehs/general_safety/general_ergonomics_video.htm
Ergonomic Standard and Guidelines—University of Maryland http://www.otal.umd.edu/guse/standards.html
Ergonomic Workstation Guidelines—NC State University http://www.ncsu.edu/ehs/www99/right/handsMan/office/ergonomic.html
Loughborough University Ergonomics http://www.lboro.ac.uk/research/esri/
Louisville University Ergonomics http://louisville.edu/speed/ergonomics/
Office Ergo Guidelines—University of Sydney http://www.usyd.edu.au/ohs/ohs_manual/ergonomics/ergoguide.shtml
Office Ergonomic Standard—University of Toronto http://www.ehs.utoronto.ca/services/Ergonomics.htm
Ohio State University Ergonomics http://ergonomics.osu.edu/#
University of California, Berkeley, San Francisco Ergonomics http://ergo.berkeley.edu/
University of California Los Angeles Ergonomics http://ergonomics.ucla.edu/
University of Michigan Ergonomics http://www.engin.umich.edu/dept/ioe/C4E/
University of Nebraska Ergonomics http://eeshop.unl.edu/rsi.html
Additional Ergonomic Resources
ANSI BHMA Search http://www.buildershardware.com/20.html
Ergonomics for Notebooks http://www.ergoindemand.com/laptop-workstation-ergonomics.htm
Human Factors Standards http://www.12207.com/human_factors.htm
Ergonomic Edge http://www.ergonomicedge.com/
Ergonomic Product Guidelines http://www.cccd.edu/facultystaff/riskservices/erg_resource_center.aspx
Ergonomic Resources http://www.ergoweb.com/
Ergonomics for Teacher and Student http://www.ergonomics4schools.com/
Next Gen Ergo http://www.nexgenergo.com/
Stress Ergonomics http://www.spineuniverse.com/displayarticle.php/article1484.html
Industry Sites
3MErgo http://solutions.3m.com/wps/portal/3M/en_US/ergonomics/home/advice/workspacecomfortguide/
American Ergonomics Corporation http://americanergonomics.com/
Basic Ergo Standard http://www.ergoweb.com/resources/reference/guidelines/
Ergonomic for Writers and Editors http://www.sfwa.org/ergonomics/
Hewlett Packard Ergo Guidelines-Working in Comfort http://www.hp.com/ergo/and http://www.hp.com/ergo/pdfs/297660-002.pdf
IBM Ergo Guide-Healthy Computing http://www.pc.ibm.com/ww/healthycomputing/
Office Ergonomics Training http://www.office-ergo.com/
Office Ergonomics http://www.healthycomputing.com/office/
Repetitive Strain Injury FAQs by CTD Resource Network, Inc http://www.tifaq.org/information.html
Work-Related Musculoskeletal Disorders http://www.nsc.org/osh/Training/ergonomics.aspx

ANSI, Almerican National Standards Institute; BHMA, Builders Hardware Manufacturers Association; FAQs, frequently asked questions; NASA, National Aeronautics and Space Administration; NIOSH, National Institute for Occupational Safety and Health; OSHA, Occupational Safety and Health Administration.

Electronic Aids to Daily Living

Electronic aids to daily living (EADLs) provide alternative control of electrical devices within the environment and increase independence in tasks of daily living. This technology is also referred to as environmental control units (ECUs). Within the home, EADLs can control audiovisual equipment (e.g., television, video players and recorders, cable, digital satellite systems, stereo), communication equipment (e.g., telephone, intercom, and call bells), doors, electric beds, security equipment, lights, and appliances (e.g., fan, wave machine). EADLs are controlled directly by pressing a button with a finger or pointer or by voice command, or indirectly by scanning and switch activation. Some AAC devices or computer systems also provide EADL control of devices within the environment.

Almost anyone with limited control over his or her environment can benefit from this technology. Children and adults with developmental delays often benefit from low-tech EADLs that increase independence in play through intermittent switch control of battery-operated toys or electrical devices, such as a disco light. For those unable to operate a television remote control, switches or voice commands to an EADL device allow access to devices they would otherwise be unable to control. Many EADLs also accommodate cognitive and visual deficits. For example, an AAC device can display an icon instead of text for a client without literacy or who cannot read English. The same device can also use auditory scanning so that choices can be heard if the client has impaired vision.

EADLs are primarily used in the home, but can also be used in a work or school setting. An individual can use EADL technology to turn on the lights at a workstation and use the telephone. A child who uses a switch can participate more fully in the classroom by advancing slides for a presentation or by activating a tape player with a story on cassette for the class.

The term EADL was chosen over ECU for two primary reasons. First, the term more accurately defines this area of AT by emphasizing the task (e.g., communication is a daily living activity) rather than the item being controlled (e.g., the telephone). Second, the term was chosen to improve reimbursement by third-party providers because the category of ECUs has been poorly funded in the past. In contrast, aids to daily living (ADL) equipment is traditionally funded very well. ADL equipment, which is designed to make the client more independent in a specific daily living task, includes bath seats, toileting aids, built-up spoon handles, and zipper pulls. This equipment is defined by the “daily living” task it “aids.”

ECU devices had the same general goal, but the name failed to reflect the goal, particularly to funding agencies. EADLs expand ADL equipment to include equipment that happens to use batteries or plug into the wall, but still shares the same goal—increasing independence in tasks of daily living.

Assistive Technology for Hearing Impairments

Hearing impairment and deafness affect the feedback loop in the human environment interaction. Because most individuals can hear, it is commonly recognized as a significant barrier in communication and can compromise safety in situations where sound is used to warn of danger.

Assistive Technology for Visual Impairments

The term visual impairment technically encompasses all types of permanent vision loss, including total blindness. Low vision refers to a vision loss that is severe enough to impede performing everyday tasks, but still provides some useable visual information. Low vision cannot be corrected to normal by eyeglasses or contact lenses.

Low-Tech Visual Aids

A variety of AT devices and strategies can help individuals with visual impairments become more mobile; perform daily activities, such as reading, writing, and personal care; and participate in recreational activities. Among low-tech solutions are simple handheld magnifiers, the use of large print, and mobility devices for safe and efficient travel (e.g., a white cane; Figure 23-7). High-contrast tape or markers can also be used to indicate hazards, what an item is, or where it is located.

Other low-tech solutions include using wind chimes to help with direction finding, using easily legible type fonts such as Verdana (16 point or larger), and using beige paper rather than white to improve the visibility of text. In recreational activities, solutions include beeper balls, three-dimensional puzzles, and outdoor trails with signage (called “Braille trails”) designed to improve access to wilderness and other outdoor activities.

Braille text is still the first choice of many individuals for reading, although it is less used than in the past because of the advances in computer and other technologies. Many restaurants now provide large-print, Braille, and picture-based menus for customers with a variety of abilities.

Books on tape are another resource for individuals with severe visual impairments. In addition to commercially available tapes for sale and at public libraries, special libraries provide print materials in alternate formats for persons with visual, physical, and learning impairments. Borrowers can arrange to have textbooks and other materials translated into alternate formats. For more information, contact the American Federation for the Blind or the National Library Service for the Blind and Physically Handicapped (http://www.loc.gov/nls/) (Box 23-2).

BOX 23-2 Resources for Persons With Low Vision or Blindness

High-Tech Visual Aids

Numerous high-tech solutions exist for persons with visual impairments. Computers outfitted with a speech synthesizer and specialized software, such as Jaws or WindowEyes, allow navigation of the desktop, operating system, applications, and documents, as well as the entire Internet. Any digital text can be heard aloud by the person using this software. For text that is printed, such as menus, memos, and letters, using a technology called optical character recognition allows a page scanner and software to convert print into digital form. It can then be listened to through the computer’s speech synthesizer or converted to Braille or large print.

Another category of high-tech aids is portable note takers with either Braille or speech synthesizer feedback for the user. These devices are specialized personal digital assistants with calendars, contacts, and memo and document capabilities, and can be purchased with either a QWERTY or Braille keyboard.

For individuals with some degree of visual ability, screen magnification software such as Zoomtext (Figure 23-8) or MAGic enables the user to choose the amount (2 to 20 times) and type of magnification preferred for optimal computer access. Many magnification applications combine enlargement with speech synthesis or text to speech.

A recent addition to the list of screen magnification software is called Bigshot. This software is less expensive ($99) and provides fewer features than some other programs. However, it appears to be a highly affordable alternative for users who do not need access to the more sophisticated computer functions.

Assistive Technology for Cognitive and Learning Disabilities

Cognitive disabilities include disorders such as traumatic brain injury, mental retardation, developmental disabilities, autism, Alzheimer disease, learning disability, fragile X syndrome, and other disorders, both developmental and acquired. Most individuals in this group have not had the benefit of using AT devices because relatively few products have been specifically developed for intellectual impairments. In addition, families, teachers, and others providing support services for individuals with cognitive impairments have generally not been aware of the potential usefulness of AT.40

Most have looked to simple solutions for persons with learning impairments, cognitive impairments, or both, using strategies such as colored highlighter tape, pencil grips, enlarged text, reminder lists, and calendars. Others try low-tech adaptations such as using a copyholder to hold print materials for easy viewing, and making cardboard windows to help the eyes follow text when reading.

In 2004 the U.S. Department of Education, National Institute on Disability Research and Rehabilitation, recognizing the need to increase AT development for persons with cognitive disabilities by funding, funded the nation’s first Rehabilitation Engineering Research Center for the Advancement of Cognitive Technologies (RERC-ACT; www.rerc-act.org). The RERC-ACT is developing a wide range of new ATs designed to facilitate vocational and literacy skills, service provision, and enhanced caregiving supports for persons with significant cognitive impairments.

One of the newer developments from the RERC-ACT is the use of intelligent agents to interactively help people with everyday tasks in education, health care, and workforce training. The systems are designed to assess, instruct, or assist new readers and learners, as well as people who have speech, language, reading, or cognitive difficulties. The intelligent or “animated” agent is available on desktop or mobile computing devices. It is being used to assist persons with cognitive disabilities to learn new job tasks or to prompt them through various steps within a task, or both (Figure 23-9).

Other RERC-ACT work includes the development of “batteryless” micropower sensors. Access to low levels of power and the elimination of batteries in sensor technologies for persons with cognitive and physical disabilities enable additional prompts or inputs based on time, weight, location awareness, and other context-aware sensoring capabilities. This technology enables developers to use context-aware sensors in a multitude of environments and other ATs to facilitate the safety, capacity, and well-being of persons with cognitive disabilities. This new field of “cognitive technologies” promises numerous advances during the next decade.

Literacy Technologies

A number of both low- and high-technology solutions are available to assist literacy development. Individuals who are unable to read print materials often use books on tape or some of the text-to-speech software solutions mentioned earlier, such as Jaws. Co:Writer is an example of a specially designed application that predicts the word or phrase an individual is trying to spell as he or she begins to type a word. Other applications (e.g., Write Outloud and Kurzweil 3000) provide multisensory feedback by both visually highlighting and speaking the text an individual is generating on the computer.

In addition to helping persons with mobility impairment, VR software can sometimes be helpful for persons with learning disabilities so significant they are unable to develop writing skills. VR software enables such individuals to speak words, phrases, or sentences into a standard computer word-processing program such as Microsoft Word. A review or playback feature in the application allows writers to hear the text they have written.

Although VR software is a rapidly developing technology, the user must currently have a fifth grade reading ability to read the text used to generate a voice file, which hinders its usability by those with significant learning disabilities. Dragon Naturally Speaking has developed a VR version for children 9 years and older, but its success rate for children with learning and other cognitive disabilities has not yet been published.

Other limitations of VR include reduced accuracy in the presence of ambient noise, such as that found in a typical classroom, and fluctuating vocal abilities related to fatigue or some types of disabilities. In general, it takes more than 20 hours to train the software to an acceptable level of accuracy (greater than 90%). Caution is currently in order when prescribing this type of software, but the rapid pace of development bodes well for future use of this type of software for persons with disabilities.

Other applications for persons with cognitive impairment focus on a range of topics, including academics, money management, personal skills development, behavior training, development of cognitive skills, memory improvement, problem solving, time concepts, safety awareness, speech and language therapy, telephone usage, and recreation and games.

Prompting Technologies

Recent mainstream technology developments include handheld personal digital assistants. AbleLink Technologies, Inc. have used this technology and developed software applications (PocketCoach; Figure 23-10) that provide auditory prompts for individuals with cognitive disabilities. This software can be set up to prompt an individual through each step of a task as simple as mopping a floor, or a task as complex as solving a math problem. The latest version of this software combines both voice prompts with visual prompts (Visual Assistant). The individual setting up the system for a user can simply take digital pictures with the accompanying camera and combine them with digitally recorded voice prompts to further facilitate memory and cognition.

Selecting Appropriate Assistive Technologies

Principles of Clinical Assessment

The goal of an AT evaluation is to determine whether AT devices and services have the potential to help an individual meet his or her activity or participation goals at home, school, work, or play. Other goals include (1) providing a safe and supportive environment for the person with a disability and his or her family to learn about and review available assistive devices; (2) identifying the need for AT services, such as training support staff or integrating an AT device into daily activities; (3) determining the modification or customization needed to make the equipment effective; and (4) developing a potential list of recommended devices for trial usage before a final selection of technology is made. In addition, the individual and family, as well as the AT team, should specify exactly what they hope to achieve as a result of the evaluation (e.g., equipment ideas, potential success with vocational or educational objectives).

When selecting team members to conduct an AT evaluation, professional disciplines should be chosen based on the identified needs of the person with the disability. For example, if the individual has both severe motor and communication impairments, team members should include an occupational or physical therapist with expertise in human-technology interface, as well as a speech-language pathologist with a background in working with persons with severe communication impairments and alternative forms of communication. If a cognitive impairment has been identified, someone versed in learning processes, such as a psychologist, neurolinguist, teacher, or special educator, would be an appropriate member of the team. If there is an ergonomic issue (e.g., repetitive stress injury), an evaluator with training in ergonomic assessment or a background in physical or occupational therapy is a necessary component for a successful experience.

It is not appropriate for an AT vendor to be called in to perform an AT evaluation. Although vendors can and should be members of the evaluation team, it must be recognized that they have a conflict of interest because they earn a living by selling products. When working with a manufacturer or vendor, it is important to work with a credentialed provider. When requested by the team, vendors demonstrate their products, discuss pertinent features, and assist in setting up the equipment for evaluation and trial usage. However, other team members, including the end user and family, should perform the evaluation and make the final recommendations.

Phase 1 of the Assessment Process

Knowledge within the field of AT continues to expand and change, sometimes on a daily basis. This directly affects whether the AT device recommended by the assessment team will be used or abandoned by the consumer.15,19 As a result of rapidly changing information, the evaluation process continues to be refined. Many researchers are working to develop standardized AT measurement tools, but the fact remains that few resources are available to guide practitioners who have not received formalized training in AT assessment.

As mentioned earlier in this chapter, the most common reason AT is abandoned is because the needs and preferences of the consumer are not taken into account during the evaluation process. Other reasons cited for abandonment of devices include the following22:

Given the relationship that must develop between individuals and AT devices, it is common sense that these factors be considered during the evaluation process. The AT assessment process has evolved from a random process of trying out any number of devices with the individual, to a team process that begins with the technology out of sight.

Phase 1 of the assessment process begins when a referral is received. Standard demographic and impairment-related information is collected, usually over the phone. In most cases, cognitive, motor, vision, and other standard clinical assessments have already been performed, and a release of information is requested from the individual or caregiver so information can be forwarded to the team. If appropriate assessments have not been conducted, they are scheduled as a component of phase 2 of the assessment process.

Based on the preliminary information, an appropriate team of professionals is assembled, and a date is chosen for the evaluation. The team leader takes responsibility for ensuring that the individual with the disability, the family, and any other significant individuals are invited to the evaluation.

At the initial meeting, team members spend some time getting to know the individual. Using methods described by Cook and Hussey8 and Galvin and Scherer,10 the team identifies the life roles of the consumer (e.g., student, brother, or musician) and the specific activities engaged in by the individual to fulfill that life role. For example, if a young man is a “brother,” that means he might play hide and seek with a sibling, squabble over toys, or otherwise engage in brotherly activities. If he is a musician, then he might want or need to have access to musical instruments, sheet music, or simply a radio.

Next, the team identifies any problems that might occur during the individual’s daily activities. For example, the musician might not have enough hand control to manage recording equipment, or could experience visual or cognitive difficulties with sheet music. The team asks specific questions about where and when these difficulties occur (activity limitations). Perhaps problems occur when the individual is tired or not properly positioned, or when trying to communicate with others. The individual is also asked to describe instances of success with these activities and to discuss what made them successful (prior history with and without technology). By now the team is usually able to recognize patterns of success and failure from the individual’s perspective as common limitations across environments emerge.

Finally, the team prioritizes the order in which to address barriers to participation, and a specific plan of action is developed. This specific plan of action contains “must statements” such as “the device must have a visible display in sunlight,” or “the technology chosen must weigh less than 2 lb.”

It is at this point that the team might be reconfigured. For example, if the individual is not properly seated and positioned, he or she is referred to the occupational or physical therapist for a seating and positioning evaluation before proceeding further. Some members of the team may leave after determining that further assessment from their perspective is not needed. In other situations as additional needs becomes apparent, new members are invited to join the team (e.g., a vision specialist). At all times the assessment team includes the individual and caregivers as the primary members.

Phase 2 of the Assistive Technology Assessment

Once the team has agreed on the specific plan of action and those things that “must” occur, phase 2 of the assessment process begins. The person with the disability, the caregivers, or both, are asked to preview any number of AT devices that might serve to reduce activity limitations and increase participation in chosen environments. These AT devices are tried along with various adaptations, modifications, and placements to ensure an appropriate match of the technology to the individual.

It is at this point that the clinician’s AT skills become critical. If trial devices are not properly configured or if the wrong information is given to the consumer, he or she will be unable to make an appropriate selection. Because many devices require extensive training and follow-up, it is essential that realistic information about training and learning time is provided and appropriate resources within the local community identified. With very few exceptions the wise course of action involves borrowing or renting the AT device before making a final purchase decision. For many individuals the actual use of technologies on a day-to-day basis raises new issues that must be resolved. For instance, there might not be the local supports necessary for the technology that appears to be best for an individual. In these cases it is best to first identify local resources or local AT professionals willing to seek additional training before sending the device home with the user. Consumers and their families should always be informed so they can make the final decision regarding when and where the equipment will be delivered.

Unexpected benefits of trial use occur as a result of improved functioning, including changes in role and status. In some cases these unexpected benefits create an entirely new set of problems. For most individuals these problems can be resolved with time, energy, and patience. Others decide that they either prefer the old way of doing things or that they are interested in adding or changing the technology once they have had a chance to experiment with it in different settings.

AT professionals, in consultation with the physician, should also anticipate future needs (e.g., physical and cognitive maturation), and final decisions should consider both the expected performance and durability of the device.31

Writing the Report

The evaluation report documents the AT assessment process and must include several components. It is important to use layman’s terms to help case managers, educators, and others unfamiliar with ATs understand the process.

In cases where medical insurance is being used to purchase technology, it is essential to document the medical need for the device(s) within the report. This information will be included in the “letter of medical necessity” required by medical insurers before funding approval. For example, the evaluation report might state, “Mr. Jones will use this wheelchair to enable safe and independent mobility in the home and community and to meet the functional or activities of daily living goals as listed.” In instances where educational or vocational funding is being requested to purchase the technology, the report should focus on the educational or vocational benefit of the assistive devices and how relevant goals will be met with the recommended equipment.

It is also extremely important that all components of the AT device be included in the list of recommended equipment (e.g., cables, ancillary peripherals, and consumable supplies). In many instances devices are recommended for purchase as a “system.” As a result, acquisition can be delayed for months because an item was not included in the initial list. An estimate of the amount of time, cost, and source of training should also be included at this point. Purchasing AT devices without paying for the AT services needed to learn how to use and integrate the devices into identified life activities will result in low use or abandonment.2931

Finally, it is also important to include contact information for the vendors who sell the equipment. Many purchasers are unfamiliar with rehabilitation technology supply companies, and acquisition can be delayed if this information is not included in the report.

Physician Responsibilities

Letters of Medical Necessity

Physicians are frequently asked to write “letters of medical necessity.” Well-written letters of medical necessity help ensure that the AT needs of patients are met. These letters should include the diagnoses (International Classification of Diseases codes) and the functional limitations of the individual (e.g., balance disorder or developmental delay). There should also be a statement about the patient’s inability to perform specific tasks, such as activities of daily living, work activities, and the ability to walk functionally.

For example, individuals with severe communication disorders typically cannot communicate verbally and/or in writing, and are often unable to communicate independently over the phone. This would also mean they are unable to adequately communicate their health care needs to medical personnel and are therefore unsafe or at risk. These details should be included in a letter of medical necessity.

The letter should also include a paragraph stating why the equipment is necessary. For example, the use of the equipment will allow the patient to do the following:

Sometimes the equipment may simply be required as a lifetime need, such as a wheelchair or specialized medical bed.

Next, the letter needs a rationale for choosing the specific equipment. This requires describing the specific equipment features and listing all required components. This might include the following:

Funding Assistive Technology

The funding sources for AT devices and services fall into several categories. The AT assessment process often helps to identify which source will be used. One source is private or government medical or health insurance. Health insurance defines AT as “medical equipment necessary for treatment of a specific illness or injury,” and a physician’s prescription is usually required. When writing a prescription for an AT device, it is important that physicians are aware of the costs and benefits of the devices and be prepared to justify their prescriptions to third-party payers. Funding includes not only the initial cost of the device, but the expense involved in equipment maintenance and patient education or training, as well as the potential economic benefits it provides to the patient (e.g., a return to work).

AT is usually covered under policy provisions for durable medical equipment, orthoses and prostheses, or ADL and mobility aids. With private health insurance and with government insurance programs, such as Medicaid and Medicare, coverage is based on existing law and regulations. In 2002, AAC devices were included for reimbursement by Medicare. AT professionals and other health care providers should continually advocate for adequate coverage of AT in all health care plans

Funding for AT is also available from other federal and state government entities, such as the Veterans Administration, State Vocational Rehabilitation Agencies, State Independent Living Rehabilitation Centers, and State Department of Education Services. Local school districts might also fund education-related AT for children.13

Each agency or program sets criteria for the funding of AT devices based on its mission and the purpose of the technology. For example, vocational rehabilitation agencies pay for AT devices and services that facilitate or help maintain paid employment, and education systems fund AT that enables students to perform or participate in school.

Funding is generally available for AT, but persistence and advocacy by the AT provider are required for success.32,35 The AT provider must also keep abreast of the requirements of various funding sources, to direct the client to appropriate organizations. Private funding is often available through subsidized loan programs, churches, charitable organizations, and disability-related nonprofit groups. Often funding from several sources is needed to reduce personal out-of-pocket costs. It is important that the presumed availability of funding not drive the evaluation process and limit the options that are considered for an individual. When the need and justification for a particular AT solution are clear, it becomes much easier to locate a source of funding and make the case for purchase of the AT device or service.

Beukelman and Mirenda3 identify five steps in developing a funding strategy:

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