6. SPIRITUAL CARE ACROSS CULTURES

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CHAPTER 6. SPIRITUAL CARE ACROSS CULTURES
Charles Kemp

DEFINITIONS AND CONCEPTS

Spirituality is the incorporation of a transcendent dimension in life.
Religion is an organized effort, usually involving ritual and devotion, to manifest spirituality. “Organized” does not necessarily imply group efforts; individual ritual and devotion are integral to all major world religions.
Faith is the acceptance without objective proof, of something, such as God.
Culture is “the learned and shared beliefs, values, and lifeways of a designated or particular group that are generally transmitted intergenerationally and influence one’s thinking and action modes” (Leininger, 2002).
Cultural competence is the ability to “perform and obtain positive clinical outcomes in cross-cultural encounters” (Lo & Fung, 2003, p. 162).
Spiritual care competence may be defined in a like manner: the ability to “perform and obtain positive clinical outcomes” in spiritual care encounters (Lo & Fung, 2003, p. 162).
Spiritual and cultural issues, characteristics, and needs are often intertwined and difficult to separate. In other cases, they may have little connection with one another and sometimes one is of greater importance than the other (Kemp & Rasbridge, 2004).
The incorporation of these concepts into the complex matrix of care for a person who is dying and her or his family enhances the opportunity for a good death—however one might define “good death.” The question then becomes, how does one incorporate these concepts into the care or, how does one perform such care? There are no universals in being able to provide the care. Unlike the use of opioid and adjuvant medications to treat pain, clear guidelines in providing culturally and spiritually competent care are difficult to establish on the shifting sands of individual differences in patients and caregivers, cultural and language barriers, religious and spiritual variables, changes in physical condition, and the myriad other factors affecting the patient and family.
As with the treatment of physical symptoms, failure also occurs in providing spiritual care and/or cross-cultural care. In postmodern society, radically different spiritual and cultural realities exist, and their intersection in, for example, the palliative care setting, is not always a success story. Spiritual care based on one faith (or on spirituality without a specific religious foundation) may not connect in any way with a person of a nonsyncretic faith such as evangelical Christianity or Islam (Narayanasamy, 2004a). Likewise, failure may accompany attempts to reach across the cultural chasm between a postmodern, high-tech culture and a traditional culture of the developing world. A myriad of individual, familial, systemic, gender, cultural, and other reasons for failure exist. Regardless of success or failure, working toward rapport and manifesting respect for all aspects of the patient’s life and being are essential qualities of health care.
There are, however, care-enhancing factors that have at least the potential to enhance the opportunity for a good death. For the sake of clarity these are considered separately here, but as with Yalom’s “curative factors” for group psychotherapy, they are intricately interdependent, part of a dynamic process, and of varying value in various situations and at various stages of the process (Yalom, 1995). The most straightforward way to use these care-enhancing factors is to operationalize them one by one or several at a time over time in providing palliative care. For example, clinical competence in physical care would be operational from the beginning of a particular care situation, as would nonjudgmental acceptance of the person receiving care. However, at the outset of care, the advanced practice nurse (APN) may lack cultural or spiritual care competence specific to the patient. This factor would be operationalized as the APN gains specific cultural competence or competence related to the patient’s religion. The term “over time” recognizes that the APN may require time to acquire or implement some factors and that the patient may not immediately (or ever) recognize that a factor is present, that the APN is accepting of the patient’s past, religion, or other aspects of the self.

CARE-ENHANCING FACTORS

Clinical Competence in Physical Care

Competent physical care is the first and an essential step in providing care in all human dimensions. While there may sometimes be exceptions (e.g., spiritual factors may transcend physical suffering), it is nearly always necessary to first or at least concurrently address physical issues (Kemp, 1999). The challenge for the APN is to maintain his or her physical care competencies and to apply evidence-based practice to the dynamics of palliative care. A rapid acquisition of new competencies may be required in the care of a patient with a diagnosis or problems such as an unusual paraneoplastic syndrome, cutaneous manifestation of a less common cancer, or other problem with which the APN is less familiar. Likewise, new and specific cultural or spiritual care competencies may need to be acquired.

Cultural Care Competence

As cited earlier, Lo and Fung’s definition of cultural competence is the ability to “perform and obtain positive clinical outcomes in cross-cultural encounters” (2003, p. 162). Within this broad competence are two more specific competencies:
Generic cultural competence is “knowledge and skills applicable to any patient or community cross-cultural encounter” and is gained principally through ongoing mindful experience in cross-cultural encounters (Kemp, 2005). At least in part, such knowledge and skills include attributes such as those noted later (see Care-Enhancing Interventions).
Specific cultural competence is “knowledge and skills applicable to patients and communities from specific cultural backgrounds” and is gained through study, investigation, and experience in working with specific cultures (Kemp, 2005, p. 45). It is important to recognize (1) how one’s own culture influences one’s perceptions (positive and negative) of other cultures and (2) that culture-specific knowledge is only a starting point to understanding individuals from that culture.

Spiritual Care Competence

As with cultural competence, spiritual care competence may be defined as the ability to “perform and obtain positive clinical outcomes” in patient care encounters that involve spiritual matters such as spiritual despair (or spiritual strength); similarly, there are two basic components in spiritual care competence (Lo & Fung, 2003, p. 162):
Generic spiritual care competence is knowledge and skills applicable to any patient spiritual care encounter and is gained principally through ongoing mindful experience in spiritual care encounters. “Mindful” refers to participant-observer interactions The APN should remain aware of the effects of her or his care on patients and of personal reactions to patients in these situations—in terms of both individual patients and any patterns of effect(s).
Specific spiritual care competence consists of knowledge and skills applicable to patients and communities from specific religious or faith backgrounds. Specific competence is gained through study, investigation, and experience in working with people from specific religions. It is important for the APN to recognize that (1) a person’s own faith background influences that person’s perceptions (positive and negative) of other faiths and (2) faith- or religion-specific knowledge is only a starting point for understanding individuals from that faith background.
Religion and faith are often highly charged or controversial topics. In some cases, books and other resources are attempts to justify the author’s position, positive or negative, about the topic, especially when writing about faiths other than the author’s. While it is impossible for most health professionals to read the scripture of every world religion, it will benefit professionals and their patients to be familiar with primary scriptural sources and commentary on faiths with which there is contact (e.g., practitioners who care for Muslim patients will benefit from reading the Qur’an and related commentary).

Care-Enhancing Interventions

The following discussion of care-enhancing factors is based on the idea of the existence of basic human needs that generally hold true across cultures and time. The factors/human needs as explicated here are not definitive, that is, there are authors who have noted more, fewer, or slightly different needs, but these are likely acceptable to most practitioners. Care-enhancing factors include the patient experiencing (and the APN promoting) the following (Bartel, 2004; Galek, Flannelly, Vane et al., 2005; Maslow, 1998; Narayanasamy, 2004b; Yalom, 1995):
▪ Self-actualization or growth and fulfillment
▪ Meaning
▪ Hope
▪ Relatedness (spiritually, to God, deity or deities, higher power; culturally, to culture)
▪ Forgiveness or acceptance
▪ Transcendence
Religion, faith, and culture offer answers or guidance to varying extents to answers to these issues. A lack (partial or complete) in religion, faith, or culture may result in difficulties for the patient in addressing these issues. Such a lack also, of course, guides the APN in providing care.

Self-Actualization or Growth and Fulfillment

Self-actualization or growth and fulfillment may be viewed as integral to spiritual growth. Indeed, in the discussions below, self-actualization or growth and fulfillment are implicit in almost every category of care-enhancing factors. In this section, however, the discussion is focused more on cross-cultural care.
Maslow (1998) was clear that self-actualization is the realization of the full human and preexistent potential of a person—which is not dissimilar to the purposes of palliative care given above. For the vast majority of humankind, self-actualization is not a state a person reaches and remains in. Rather, it is a process of progress mostly toward a higher state of being with all the shortcomings inherent in being human.

Assessment and Interventions

Tripp-Reimer, Brink, & Saunders (1984) published a definitive short cultural assessment tool, which is adapted here. Readers may note numerous potential connections to both spiritual issues (e.g., what do you think caused your problem?) and insights into individual or family issues in the context of palliative care (e.g., what problems has your sickness caused you or your family?):
▪ What do you think caused your problem?
▪ Do you have an explanation for why it started when it did?
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