1. THE ADVANCED PRACTICE NURSE IN PALLIATIVE CARE

Published on 09/04/2015 by admin

Filed under Hematology, Oncology and Palliative Medicine

Last modified 09/04/2015

Print this page

rate 1 star rate 2 star rate 3 star rate 4 star rate 5 star
Your rating: none, Average: 0 (0 votes)

This article have been viewed 4242 times

CHAPTER 1. THE ADVANCED PRACTICE NURSE IN PALLIATIVE CARE
Kim K. Kuebler, James C. Pace and Peg Esper
A role-delineation study differentiating the CNS and NP was published by the American Nurses Association (ANA) and can be accessed at www.ana.org. The Oncology Nursing Society also completed a role-delineation study that differentiates the roles of the CNS and NP and has began to offer separate certification exams for these two roles (available at www.ons.org).
For the purposes of this chapter, the advanced practice nurse (APN) is identified as being either a CNS or an NP providing care and services to an adult patient population. It is with the understanding that the ANP is responsible for and has an active clinical management role in diagnosing, interpreting, and prescribing for individual patients in the palliative care setting. NPs are allowed to prescribe in all 50 states, whereas the CNS can currently prescribe in 30 states (available at www.nacns.org).

THE ROLE OF THE ADVANCED PRACTICE NURSE IN PALLIATIVE CARE

The APN who has undergone additional education in the care and management of adult patients is in an ideal position within the health care delivery team to ensure coordinated and continuous care for patients and families who are affected by chronic debilitating disease. While palliative care is appropriate for both adult and pediatric patients, the focus in this text is the adult patient and APNs who provide care to this patient population. APNs can serve as the conduit for the patient and family as they traverse the multiple dimensions associated with advanced disease. These dimensions include symptom burden, functional capabilities, communication patterns, and the psychoemotional and spiritual issues that interfere with quality of life.
The APN’s ability to perform comprehensive physical evaluations, order and interpret diagnostics, and prescribe appropriate medications while receiving reimbursement allows this clinician to become a valuable and important member in the patient’s plan of care (Kuebler, 2003). The APN can be instrumental when initiating palliative interventions throughout the patient’s disease trajectory (from diagnosis until death), reducing symptoms and promoting a seamless care model that reduces a fragmentation of care (Davis, Walsh, LeGrand, et al., 2002; Kuebler, 2003). It is the coordination and continuous care provided by the APN throughout the disease course that can help to reduce patient abandonment and isolation from within the healthcare system.
APNs not only provide comprehensive palliative care in a continuous and coordinated fashion but can do this by offering the patient and family compassion along with skilled assessment, interventions, and ongoing evaluation throughout the course of advanced disease until death. This clinician meets the discipline recommendations in palliative care as defined by the World Health Organization (1990):
▪ Substantial body of knowledge
▪ Recognized skill sets requested in consultation and clinical practice
▪ Evidence-based practice, a result of disseminated research data in peer review publications
▪ Development of professional organizations
▪ Growing number of APNs seeking training and additional education in the field
▪ Extensive bibliography
Davis and colleagues (2002) have further identified essential skills necessary for palliative care clinicians to include effective communication, informed decision making, competent management of clinical complications, symptom control, psychological care, care of the dying, and coordination of care (Davis et al., 2002). The APN who integrates palliative interventions into the patient’s plan of care is able to incorporate these skills into practice. The APN is able to provide the patient with his or her advanced knowledge of pathophysiology, pharmacology (pharmacodynamic and pharmacokinetic metabolism), and the ability to use appropriate evidence-based interventions (Kuebler, 2003). The APN who is in a collaborative practice arrangement with a physician is able to manage the complex needs of the patient by ordering and interpreting diagnostics, prescribing appropriately, and identifying prognostic indicators that help to set the stage for caring conversations that may shift the goals of care from curative to palliative. The APN is able to identify, support, and make the appropriate referrals that address the multidimensional needs of the patient and family within communities (Kuebler, 2003).

DIFFERENTIATING THE ROLES OF THE ADVANCED PRACTICE NURSE

The Clinical Nurse Specialist

The CNS is an RN with a graduate degree (master’s or doctoral degree) leading to preparation as a CNS. The CNS specializes in a particular care setting (critical care, home care, community care) as well as in a specific disease or health issue (diabetes, medical-surgical, pulmonary, trauma). The CNS is deemed a clinical expert in the application of theoretical principles and research-based knowledge in regard to this chosen area of specialization in setting and practice. The CNS’s scope of practice is generally defined as encompassing three distinct spheres of influence (Lyon, 2005):
1. Patient/family (direct care)
2. Nursing personnel (advancing the practice of nursing)
3. Organizational/network of care (advancing the organizational management of care)
Practice is usually designated as within a specified interdisciplinary team (e.g., oncology services) or a particular service within an institutional setting (e.g., nursing services or department of internal medicine). Most often, it is the employer that defines the nature and scope of the CNS’s sphere of influence, provides and funds the position either totally or in part, and determines how specific outcomes are to be evaluated and by whom. The National Association of Clinical Nurse Specialists (NACNS) (2004) statement on clinical nurse specialists practice and education defines the core competencies for the CNS in each of these core spheres. Additional direct and indirect care aspects of the CNS include indirect roles as consultant-liaison, staff advocate, peer educator, change agent, policy analyst, patient educator, product evaluator, researcher (to include contributing scholarship to the literature), supervisor, mentor, and community advanced practice nurse (Hawkins & Thibodeau, 2000). Currently, there is a shortage of CNSs across the country. During the 1990s, many hospitals and academic centers were pressured to downsize or eliminate CNS positions as a result of reductions in reimbursables to hospitals, the increased costs of care, and the “nonreimbursable” nature of many, if not most, CNS roles (Hawkins & Thibodeau, 2000).
Current challenges for APNs who function in CNS roles include the absence of standardized credentialing requirements for CNS practice that allow for uniformity across state lines. This has led to differing philosophies regarding the educational preparation for the CNS, a defined scope of practice (despite the development of core CNS “competencies”), whether a “second” license is needed for an expanded scope of practice to include prescriptive authority in some states, and how to ensure competence in specialty areas of practice where no current examination exists. There is an evolving need for the CNS to continue to contribute to the literature to support advance nursing practice with a focus on specific disease and care settings, outcomes evaluation based on nursing interventions (best practices) in patient care, and the systematic evaluation of evidence-based innovations in nursing practice. These contributions support the valuable role of the CNS and the impact that they can make on patient care (Lyon, 2005).

The Nurse Practitioner

NPs are usually defined by a specified patient population: family NP (FNP), adult NP (ANP), gerontology NP (GNP), women’s health NP (WHNP), psychiatric-mental health NP (PMHNP), acute care NP (ACNP), and pediatric NP (PNP). NP curricula share certain core content areas (advanced pathophysiology, pharmacotherapeutics, advanced health assessment, research and theory development, role development) and then explore pertinent specialty content according to designated populations of need and interest. It is generally recognized that the primary activities/functions of the NP include screening, physical and psychosocial assessment by means of taking health histories and performing physical examinations, patient care management to include follow-up when deviations from the norm are detected, continuity of care, health promotion, problem-centered services related to diagnosis, identification and mobilization of resources, health education, and patient and group advocacy (Hawkins & Thibodeau, 2000). A key component of these functions is the management of pharmacologic therapeutics in all 50 states across all therapeutic specialties and in all locales (Towers, 1991) (Box 1-1). APN curricula are challenged to emphasize quality of care, financial as well as time-based productivity, evidence-based outcomes, and practice cost outcomes, while contributing to equity of care (Allan, 2005). Current challenges include the need to develop practice models that create effective evidence-based interventions for populations differing in terms of ethnicity, culture, gender, and geographic location.
Box 1-1

• Assists consulting physician with treatments and/or examinations
• Consults with physician regarding history, physical examination, assessment, and/or plan of care as needed and as required by protocol (protocol manual on file and duly signed by all parties)
• Dictates or writes clinic notes and any needed discharge summary
• Makes rounds with or in consultation with sponsoring physician
• Obtains health history and performs physical examinations
• Provides health counseling and guidance and instructions to patients regarding diet, medications, disease education, exercise, discharge plans, and follow-up care
• Performs procedures/treatments in consultation with physician with appropriate documentation of same
• Writes or issues orders that are authenticated by both NP and consulting physician
• Determines diagnostics and procedures necessary to augment physical findings and interprets laboratory, radiographic, and clinical data in planning the course of management
• Prescribes medications for patients according to the approved formulary and/or protocol (state dependent)
• Takes call for specified periods of time with physician backup and responds to emergencies within his or her professional limitations

THE MACMILLAN NURSE

The historical and positive role that the Macmillan nurse has demonstrated throughout the British communities can easily be applied to that of the American APN providing palliative care. Macmillan nurses are posted throughout the United Kingdom; they are highly respected for their palliative care skills and in many ways are the public face of specialist palliative care in the United Kingdom (Skilbeck & Seymour, 2002).
The Macmillan nurse’s key role is to influence patient care by providing direct and indirect services. Indirect services involve strategic and policy-making activities (e.g., administrative, legislative) that influence patient care. They accomplish this by empowering and supporting primary care providers by advising on and assessing the development of patient care plans and clinical practice and through teaching and education (Macmillan Cancer Support, 2006). Direct care offered by Macmillan nurses is at the request of primary care providers and usually occurs when individual patients present with complex problems that would require specialist nurse intervention in the management and planning of their care (Macmillan Cancer Support, 2006). The focus of this role is clinical expertise, education, research, and management, contributing to multidisciplinary activities in various settings (e.g., hospital, long-term care, community home care) (Jack, Oldham, & Williams, 2003).
The Macmillan nurse is a CNS who is required to demonstrate a range of abilities that include expertise in and knowledge of advanced disease management and clinical leadership skills that enable other health care professionals to develop palliative expertise. Effective and therapeutic communication skills are required to ensure that their knowledge and skills are passed on to primary care providers (Macmillan Cancer Support, 2006).
A study that evaluated Macmillan nursing outcomes in patients with advanced cancer (n = 26) revealed that Macmillan nurses provided important assistance to patients by facilitating clinical discussion between patient and physician during medical consultations. They participated in co-coordinating actions resulting from those discussions and navigating the patient and his or her family through the healthcare system (Corner, Halliday, Haviland et al., 2003). It was pointed out in this study that Macmillan nurses spent more time with patients and their caregivers, answering questions, explaining medical terminology, and assisting patients to feel more secure about their treatment and what was happening to them—along with understanding the rationale behind specific diagnostics and whether further investigations were necessary and/or how to understand the results of these findings. Macmillan nurses often serve as the intermediary between the medical treatment team and the patient (Corner et al., 2003).
The Macmillan GP in the United Kingdom serves as a facilitator to improve the care of patients with cancer by providing collaborative practice with physicians in primary, oncology, and palliative care settings (Macmillan Cancer Support, 2006). Aspects of this role that can be applied to the APN in palliative care include the following (Macmillan Cancer Support, 2006):
▪ Being an APN in active practice for at least 3 years, with clinical experience in managing patients with cancer and palliative care needs
▪ Showing an active interest in oncology and palliative care with a good understanding and awareness of the emerging cancer and palliative care evidence and strategies nationally and internationally
▪ Demonstrating interest in education and training in palliative care
▪ Having comprehensive interpersonal, communication, and presentation skills
▪ Working as a member of the multiprofessional (interdisciplinary) team, appreciating different roles and responsibilities of the team
▪ Maintaining skills and knowledge in cancer, internal medicine, and palliative care

Lessons Learned from Macmillan Nurses

Buy Membership for Hematology, Oncology and Palliative Medicine Category to continue reading. Learn more here